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Workshop On Wellness ~
The Art Of Healing

BCCNC’s Third Annual Workshop on Wellness presents "The Art Of Healing" and a reception at the Radisson Governors Inn, Research Triangle Park, September 18th and 19th.  The Reception Friday evening (7:30PM - 10:00PM) will bring together breast cancer survivors, researchers, politicians and many others from across the state who are concerned with breast cancer issues. Join us for an evening of food, song and celebration of life.

The Workshop on Saturday (8:15AM - 4:00PM) will include:

Research Updates. North Carolina’s leading researchers on breast cancer, Bob Millikan (D.V.M, M.P.H., Ph.D., Investigator, UNC-CH Breast Cancer SPORE) and Susan T. Jackson (Carolina Breast Cancer Study, UNC-Lineberger Comprehensive Center, Chapel Hill) will discuss the latest findings from the North Carolina Breast Cancer Study. Also, James J. Vredenburgh (M.D., Associate Professor, Duke University Bone Marrow Transplant Program, Duke University, Durham) will update us on current and future breast cancer treatments. Participants will have an opportunity to ask questions and discuss concerns with these researchers.

Balance And Harmony In Your Life With Feng Shui. Sandra Goodall will tell us about the ancient Chinese method of arranging your home for health and happiness.

Healing With Guided Imagery. Martha Hamblin, official photographer for the Susan G. Komen Race for the Cure in the Triangle, will provide a learning session entitled, "Healing With Guided Imagery".

Opening Our Hearts Through Imagery, Art & Sharing. A "hands on" program led by Glenda Cedarleaf-Orr, a Certified Clinical Social Worker who specializes in working with cancer patients.

A photo exhibit, Cherishing Our Bodies, by Martha Hamblin, will be on display during the conference.

For more information, call Catherine Andrews at 919-563-9818 or leave a message on the BCCNC voicemail at 800-419-5481. There are a limited number of scholarships available. Registration deadline is September 11, 1998.

Honoring Breast Cancer Survivors

To honor women who have survived breast cancer and in memory of those who have lost their lives, a tapestry called "Buttons of Hope" is being created.

Personally Yours Mastectomy Boutique in Durham is sponsoring "Buttons of Hope" and asks the community’s help in completing this project.

Survivors are asked to mail in a clothing button of any type or color, except pink. Family and friends of women who have lost their lives are asked to send in a pink button of any size or shape. Buttons may be mailed or delivered in person to Personally Yours, 2502 Albany St., Durham, NC 27705.

The tapestry will depict the pink Breast Cancer Awareness Ribbon on a white background. Survivor’s buttons will be sewn on the background and the pink "memory buttons" will be sewn on the ribbon.

Personally Yours owners Diane Cooper & Kellie O’Steen hope to complete the project by October, National Breast Cancer Awareness Month, and have it displayed for public viewing. Contact Diane Cooper or Kellie O’Steen, Personally Yours, 2502 Albany Street, Durham, or call 919-477-9784 Monday through Friday.

Exercise Buddies

Wendy Demark, a researcher in nutrition and exercise, is looking for breast cancer survivors who are or have been exercisers to provide encouragement - be a "buddy" - for women who are in a study on nutrition and exercise to control weight changes while undergoing adjuvant chemotherapy. For information, contact Wendy at dmar@mc.duke.edu or 919-681-3261.

Book Review

By Barbara Parker

As a voracious reader who is passionate about breast cancer, I would like to recommend two recent books for others. Both these books should be available in local bookstores or public libraries.

The first is Holding Tight, Letting Go by Musa Mayer. Its focus is on metastatic breast cancer and, since my breast cancer has not recurred, I felt anxious about reading it. Mayer writes 'from the horse's mouth' so to speak. A member of a breast cancer support group and a participant in an on-line breast cancer chat group, she learned about and discussed advancing cancer with many other women. With their permission, she has incorporated their experiences a powerful primer on how to live well with the knowledge that life expectancy is limited. My fear that this book would be difficult to read and increase my anxiety was unfounded. It was, rather, reassuring that there are ways to deal with the nightmare of recurrence we all fear, and partners in the journey. It is a book I recommend wholeheartedly.

The second book I think you would enjoy is Making Miracles Happen by Gregory W. Smith. Survivor of a brain tumor ten years after receiving a prognosis of three months to live, Gregory Smith writes about how he has searched out and took advantage of doctors and treatments on the cutting edge of medical science. (You may have seen him on a 60 Minutes segment last year.) This isn't just another cancer survivor's personal story. He incorporates the experiences of many other unexpectedly long survivors to provide the reader with a blueprint of how to map a personal strategy. Inspiring and instructive, it belongs in the home of everyone who wants to outlive the predictions of "experts."

Susan G. Komen Drive for the Cure®

Again this year, the Susan G. Komen Foundation and BMW of North America are collaborating to bring the Drive For The Cure to many areas. For every test drive mile, BMW will donate $1.00 to the Komen Foundation, hopefully to reach a goal of $1,00,000.

Drive for the Cure locations in North Carolina:

Raleigh on October 18th

Charlotte on October 23rd

Winston-Salem on October 22nd

Chapel Hill on October 20th

Greensboro on October 21st

Wilmington on November 4th

Fletcher on October 27th

The Susan G. Komen Foundation is the largest private breast cancer funding organization in the country. Lineberger Comprehensive Cancer Center at UNC-CH is one of the largest recipients of Susan G. Komen Foundation grants.

Correction…

Somehow gremlins got into our March 1998 article on the Surry County Support Group. We would like to make the following corrections and apologize to all the women of this very special group.

"The Surry County Support group meets at the St. Andrew Lutheran Church in Mt. Airy," says Wilma Musser, spokesperson. "Also, the SEW volunteers are extremely proud of the fact that they reached 386 women through their education program, in 1997 and are hoping to reach 900 in 1998."

Hello Muddah, Hello Faddah
Here I Am At
CAMP SALUDA!??!

By Sara S. Williams, Chapel Hill

Well, not exactly ... but I loved telling family and friends that at age 47 I was off to "summer camp." What I did was spend the week of July 6 at Life Choices Wellness Center (LCWC) in breathtaking Saluda, North Carolina at a renewal retreat for women with breast cancer. They prefer small groups (3-8). I went with Diana (a friend I made during chemo) and Gaye (a childhood friend and my husband’s first cousin). The structured program provides a nurturing and life-affirming environment and was remarkable in its ability to meet our emotional, physical, and spiritual needs.

Here are some highlights of my week at LCWC:

Retreat facilities and staff – I give 5 stars for the comfortable and extremely well-appointed quarters and the meals (e.g., organically grown produce, lump crabmeat!) provisioned by a blue ribbon cook. Serenity abounds---whether you are enjoying the scenery while sitting on one of the decks or browsing through books in the tranquil resource room. Our facilitator, Pamela Patterson, was very effective in helping us learn and apply various concepts and skills related to healing and the meditative process. I first met Deena Talbot, the Executive Director, at Raleigh’s "Race for the Cure." She is committed, energetic, and resourceful, and LCWC is her vision becoming reality.

The Program – In addition to a structured program centered on healing, meditation, and introspection (replete with a "fire release" ceremony where you place all "negatives" into the flames!!) we each had two massages (unbelievably soothing!), did paint work with oils, and threw clay at a potter’s studio. (The potter had also made a "cancer cell" target which we bombarded with hard clay balls!)

It is an overwhelmingly positive experience, and one that I will not stop talking about and recommending for a long, long time. I’ll end with a story which has helped me throughout my cancer journey over the past ten months:

There was a little boy who longed for a pony. Every birthday he would run outside to see if a pony waited for him in his yard. He was always asking his parents for this pony. On the morning of his 8th birthday, he woke up to see this big heap of manure in the front yard---he was ecstatic!! He ran outside and began to dig furiously through the pile. His parents eventually came running outside, screaming, "What are you doing, son?" To which the little boy replied, "I figured that with all this shit around, there had to be a pony in here somewhere!"

Cancer has given me this incredible opportunity to ride on the trail of miracles. I’m so glad I found my pony at Life Choices Wellness Center.

New Breast Cancer Stamp

A new forty-cent breast cancer postal stamp is on sale now. The extra eight cents per stamp will go towards breast cancer research – 70% to the National Cancer Institute and 30% to the Department of Defense. BCCNC’s Sue Moore gave a speech at the East Coast unveiling in Chapel Hill.

Coastal Care Van

In April, New Hanover Regional Medical Center implemented a Coastal Care Van for cancer detection. The Van will primarily go to underserved areas for those who, for one reason or another, are unable to get their mammograms, pap smears, prostate screenings, skin screenings and general physicals. Mammogram equipment is on the Van. The Van will serve the people of New Hanover County and surrounding areas.

Community Charge on Cancer, sponsored by New Hanover Regional Medical Center, is training volunteers to work with the Van and to go out into the community to make people aware of the importance of early detection. For information, call Stephanie Stansell at 910-815-5867.

BCBS Golf Festival



The BCBS Golf Festival was a great success. BCCNC had three representatives present: Mary DeHaye (who planned it all), Linda Brown and Jan Hartlaub. They "covered" two holes, handing out pink ribbon pins and other goodies donated by Rex, Duke, UNC-CH, ACS, NCI, Kroger, Hannaford, Papertown and Glaxo Welcome. The highlight of the evening auction was a "button chair" which Blue Cross Blue Shield bought for $25,000! It was covered with buttons donated by breast cancer survivors. Some had special meaning and stories – for example, Kay Yow, basketball coach from NCSU, donated a button from her Olympics jacket.


FDA Seeks Advisors

The Food and Drug Administration (FDA) is seeking nominations for candidates to serve on advisory committees that review cancer therapies. Nominations may be submitted by individuals, patient advocacy organizations or other organizations. Self nominations will also be considered. The FDA believes that involving cancer survivors in the advisory committee process brings a valuable perspective to the review and consideration of new cancer therapies. Nominations should be submitted by September 15th. For the nomination guide for the selection of patient representatives to advisory committees reviewing cancer drugs, biologics or devices, please call BCCNC President Barbara Parker at (919) 782-1099.

Welcome New Members

MaryAnn Azzato, Nancy Bates, Ann McKown, Mary Marks, Sheron Sumner

Immunotoxin Studies

Source: JAMA, Jay 13, 1998.

The National Cancer Institute (NCI) is seeking patients for a new clinical study involving immunotixin erb-38, an agent in which the variable regions of a monoclonal antibody against HER-2/new have been linked to a truncated toxin. The reagent has been bioengineered to recognize the gene product of HER-2/new. Patients with breast, stomach, lung, ovarian, or colon cancer whose tumors express HER-2/neu are potential candidates. The NCI will provide patients with treatment and travel to the Clinical Center in Bathesda, MD. For information, call the NCI Clinical Studies Support Center at 888-624-1937.

Lymphedema Study

Memorial Sloan-Kettering Cancer Center News, July 1998

According to a study by Dr. Jeanne A. Petreck of Memorial Sloan-Kettering’s Breast Service, about 12 percent of breast-cancer survivors develop lymphedema – swelling of the arm and hand following removal of underarm lymph notes to see if they contain cancer cells. Dr. Petrek examined the histories of 20-year breast-cancer survivors and found two factors that placed women at high risk for lymphedema: infections or injuries of the arm, and weight gain. "We already knew that infection and obesity contribute to the onset of lymphedema, but were surprised to learn that weight gain following a cancer diagnosis is an especially high factor," said Dr. Petrek. She is now conducting a study to investigate the causes of lymphedema more comprehensively.

Menopause Booklet

Advocates participated in an international symposium in September 1997 to evaluate state of the art options for menopause treatment. The resulting booklet is "Menopause: Treatment Options for Women Surviving Breast Cancer or Concerned About Estrogen Replacement Therapy". To order, contact the Hormone Foundation at 800-HORMONE or www.hormone.org

 

Portraits of Survival

Have you, or a friend or relative wondered why the movies or programs that we see about breast cancer usually focus on a death? Or why the most visible national display, "The Face of Breast Cancer" features only those women whose cancer took their lives? Well, so have we.

While the darkest side of this disease is certainly one that the public needs to know about, it is certainly not the truest depiction of what happens after diagnosis. Surviving breast cancer is a much more common experience, especially today with earlier detection and advances in treatments. And, as we in the BCCNC can attest, thriving and blooming is also a very true aspect of the face of breast cancer!

In response, the Breast Cancer Coalition of NC decided, with the help of funds from the US Women's Open, that we'd like to launch a project that looked at "Portraits of Survival - Breast Cancer in NC." The plan is to develop a photo essay display and perhaps a video that will highlight breast cancer survivorship in our state. Breast cancer survivors of all ages, races and "experience" from all regions of NC will be featured.

BCCNC has contracted with free-lance writer, photographer, creative "Jill of all trades", Nora Streed, to work on our Portraits of Survival project. She's developed a telephone interview and will call women who completed the project interest form (each interview will be audio-taped to help assimilate all the details). The interview asks the women about:

their interests and hobbies and if they changed after the breast cancer experience,

the impact their breast cancer had on family, friends, co-workers during and after,

if there have been any surprises,

what they want people to know about them and cancer,

what they wish they had done differently before diagnosis, during the illness and since recovery.

From the 'crazy quilt' of responses to the interview, we are going to piece together some idea of who she is - who is the breast cancer survivor in NC. From there we can get a better idea of what we want the project to look
like.

If you're interested in being interviewed for possible inclusion, please complete the information on the form below and mail it to Beth Walker. Be forewarned, this may require photos, a story or both. Contacts will be made over the next few months.

Yes! I am interested in talking with you about this project.

Name: ___________________________________

Address: ____________________________________

____________________________________

City/Zip: ____________________________________

Day Phone: __________________________________

Evening Phone: ______________________________

Age: ___________________________

Race: ___________________________

How long since diagnosis:______________

I want to be a part of this project because: ____________________________________________

____________________________________________

____________________________________________

___________________________________________

___________________________________________

___________________________________________

Return to:

Beth Walker
Comprehensive Cancer Center of WFU
Medical Center Boulevard
Winston-Salem, NC 27157

 

 Upcoming Events

Workshop on Wellness

September 19th and 20th

BCCNC’s Annual Reception and Workshop on Wellness at the Governors Inn in Research Triangle Park (see article in this newsletter). For information: 800-419-5481.

The Face of Breast Cancer

September 22nd through October 4th

The traveling photographic exhibit created by the National Breast Cancer Coalition will be displayed in the South Gallery of Asheville Mall. The exhibit is sponsored by Health Partners through a grant from the St. Joseph’s Foundation as a part of Health Partners’ Breast Cancer Summit.

March on Washington

Saturday, September 26th

March on Washington for continuing Congressional support for the National Cancer Institute’s funding of cancer research and programs. Duke, Bowman Gray and UNC-CH’s Cancer Centers will sponsor busses to Washington as a one day trip for around $15-30.

For information about busses from Duke, call Judy Smith at 919-667-2610; from Bowman Gray call Jenny Morris at 336-716-6807; from UNC-CH, call Dianne Shaw at 919-966-5905. Also, Rev. Thomas Walker is organizing several busses from eastern North Carolina and can be contacted at 252/446-2378.

Anyone interested in organizing their own bus can call Gary Bledsoe at 1-877-THE MARCH for help and information

Charlotte Race For The Cure

Saturday, October 3rd

Metrolina Susan G. Komen Race For The Cure at Charlotte’s Mint Museum. Last year’s race raised more than $200,000. This year, organizers expect well over 3,500 participants. Call 704-442-7223 for information.

Pink Ribbon Campaign

October 4th - 11th

In honor of National Breast Cancer Awareness Month, October 4-11 has been proclaimed Pink Ribbon Week in North Carolina. During this week, North Carolinians are encouraged to participate in breast cancer awareness activities and to wear pink ribbons at their worksites, religious services, and community activities. For more information on how you can coordinate a Pink Ribbon Campaign in your community, call Ellen Monteith at 919-715-3372.

Beyond Breast Cancer

Wednesday, October 7th

"Piecing Together Life’s Choices and Changes". This annual event from the NC Southern Appalachia Leadership Initiative on Cancer (SALIC) will be held at the John A. Walker Center in Wilkesboro, NC, featuring speaker/humorist Laura Hamilton. Registration deadline is September 25th. For information, call 919-834-8463.

Body and Soul

Saturday, October 10th

Friday Center, Chapel Hill. Sponsored by Duke Comprehensive Cancer Center and the UNC Lineberger Comprehensive Cancer Center. This full-day symposium provides information, support, and experiences of interest to women and their families who have had a diagnosis of breast cancer or DCIS.

Designed by health care professionals and breast cancer survivors, it offers opportunities to explore the latest medical opinions on breast cancer issues, as well as strategies for coping and thriving after breast cancer. Fee is $25 (individual), $45 (family) and includes breakfast, lunch and afternoon break. Registration forms and fees must be received by September 29th. Call-in registrations between September 30th and October 5th. There will be no on-site registration. For information, call Kerry Harwood at 919-681-5288.

Living Beyond Breast Cancer

Thursday, October 29th

Rex Healthcare’s Sixth Annual Living Beyond Breast Cancer at NC State University’s Jane S. McKimmon Center from 8:00 AM - 4:00 PM. For information, call 919-571-4553.

BCCNC Quarterly Meeting

Saturday, January 9th, 1999.

BCCNC Quarterly Meeting in Wilmington. We plan to invite a speaker of interest, discuss local cooperative efforts, conduct business and provide lunch. Details to be announced.

 

SOY CHEESE

By Kim Galeaz, RD Nutrition Consultant to the Indiana Soybean Board

Soy cheese is another nutrient-rich addition to the soyfoods family. Consider these good reasons to add soy cheeses to the list: low, moderate or no fat, cholesterol free, a source of soy protein and isoflavones, great taste and texture.

Finding soy cheese at most supermarkets is a little difficult right now; most carry only a few varieties, like the individually wrapped singles. But head to your favorite health or natural food market and you will be amazed at the growing soy cheese choices. According to the 1998 Soyfoods Directory, at least 12 companies make soy cheeses today. You will recognize some of the names ... White Wave, Rella Good Cheese Co., Soyco Foods and more. Companies like Tofutti are newcomers on the soy cheese scene, with their imitation cream cheese product. Here is a look at cheese varieties and a profile of their ingredients and nutritional value.

Varieties of Soy Cheeses: Soy cheeses are available in 6-, 8-, 12- or 16-ounce packages (chunks). Some are also in individually wrapped slices, just like typical American cheese. Flavors include: cheddar, mozzarella, Swiss, Monterey jack, pepper jack/jalapeno, Mexican, garlic/herb, American, parmesan, provolone, and cream cheese.

Ingredients: While regular cheeses are made from dairy milk, soy cheeses are made from soy milk and/or tofu, which is simply curdled and coagulated soymilk. Some soy cheeses have soy protein isolate added as well as some type of oil such as canola or soybean. Flavorings are added, such as red/green peppers, or spices and herbs, depending on what type of cheese it is (pepper jack, or Mexican or garlic/herb, for example). Salt and/or sea salt seems to be added to all varieties. Some have colorings added and many include an ingredient used to improve texture, such as guar gums or carrageenan. Vegetarians are advised to read all labels, as some have milk protein (caseinate) added. But all are milk sugar (lactose) free.

 

Serving Size: A serving of any cheese, whether dairy or soy, is one ounce according to the nutrition facts label. Picture three dice stacked one on top of the other, which is equivalent to a 1 ounce cube. Or picture one of those individually wrapped American cheese slices; those are only 3/4 ounce. It is okay to eat more than one ounce of soy cheese at a meal, since most are reasonable in calories and fat. And besides, a good toasted cheese sandwich has to have at least two slices of cheese on it!

Nutrition: Regular cheeses run about 80 to 110 calories per one ounce. Soy cheeses run 55 - 80 calories per one ounce. Scanning about 10 different packages reveals the average is around 60 - 70 calories per ounce.

Protein levels vary greatly for soy cheeses, from 2 grams to 7 grams in 1 ounce. Choosing those with at least 4 grams of soy protein will help you achieve more soyfood benefits. Regular cheese has between 6 and 10 grams of protein in 1 ounce.

Many soy cheeses have calcium added, which is a plus from my viewpoint as a dietitian, because the nutritional calcium profile is then similar to dairy cheese. Most dairy cheeses provide between 15 and 30 percent of the daily value for calcium (1000 mg). Many of the soy cheeses I checked are fortified with calcium and offer between 15 and 30 percent calcium also. Several varieties have no calcium at all, so you will have to get calcium from other foods.

Like regular cheeses, soy cheeses have a moderate amount of sodium. Sodium helps give cheese flavor, as anyone who has had to consume low sodium cheese will attest to! Dairy cheeses have 100 - 450 mg sodium in one ounce; the soy cheeses I checked had no less than 200 mg. Some soy cheese brands are fortified with about 10 of the daily value for Vitamin A and E - two valuable antioxidants.

Soy cheeses contain 0 to 7 grams fat in one ounce; dairy cheeses may contain 0 to 10 grams of fat. Saturated fat will be lower in all soy cheeses, since typically their overall fat is lower and the ingredients used are either void or low in saturated fat. Many soy cheeses are equivalent to the reduced fat dairy cheeses on the market.

Soy cheeses, since they are not an animal product, are cholesterol free. Dairy cheeses contain an average of 20 - 25 mg cholesterol in one ounce.

Melting ability: Many melt just as well as full-fat and reduced fat dairy cheeses, but some do not melt as well, so some experimentation may be in order.

Taste: You be the judge! I have found many soy cheeses to be more than acceptable alternatives to traditional cheeses. However, I doubt any cheddar cheese alternative - whether soy or reduced fat dairy cheddar - will be quite the same as a nice chunk of regular sharp cheddar!

Cheeses of any kind can provide wonderful added texture and taste to many recipes, so pick up some soy cheese the next time you are grocery shopping and try a slice or a chunk. Chances are you will enjoy the taste and have one more way to include soy in your diet. Bon appetit!

Join Us . . .

As you can see, we’re continuing our work with breast cancer awareness & advocacy. We appreciate your support and hope you will continue to help us with our work in North Carolina.

If you are already a member, please check your mailing label to make sure you’re membership is active for 1998.

If you want to renew or join in our fight to eradicate breast cancer, simply return this form, along with your contribution, to the address below.

We are excited about our achievements and think we’re making good progress; but to really be successful, we need your support & participation!

 

we can make a difference!